![]() It is caused by a loss of specialized nerve cells, called motor neurons that control muscle movement. The drug Zolgensma, which costs around Rs 16 crore, was administered to Bharathi at the Baptist Hospital in Bengaluru on Saturday.īharathi's parents, Jagadeesh and Ezhilarasi, both bank employees managed to get the drug for her daughter due to generous contributions from people across the state.īharathi was diagnosed with SMA - a genetic disorder characterized by weakness and wasting in muscles used for movement. Nearly six months after she was diagnosed with an extremely rare medical condition called spinal muscular atrophy (SMA), Bharathi, a two-year-old girl from Tamil Nadu's Thanjavur district was administered a life-changing drug.
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